EURORDIS International Initiatives
With thanks to our 2022 donors:
EURORDIS’ International Initiatives are an assembly of activities with an impact across rare diseases and across borders. This umbrella programme supports an ecosystem of recurring, interconnected activities, which together aim to:
- Build the capacity and train patient advocates to act at the local, national and regional level;
- Understand and present the needs, perspectives and experiences of patients and their families;
- Empower patients and raise awareness through multilingual communications and the global rare disease day campaign;
- Elevate the rare disease patient voice to strengthen international policy on rare diseases.