Raquel Castro

  • Open Academy Director, Social Policy Director

Raquel Castro

Raquel Castro joined EURORDIS in 2012.

Currently based in Barcelona, Raquel is part of the Operations Team and is responsible for leading the EURORDIS Open Academy programme and EURORDIS' social policy activities.

Raquel coordinates the operations, strategic development and partnerships of the EURORDIS Open Academy and its training programmes.

After 6 years in charge of EURORDIS’ social projects, Raquel continues to disseminate everyday needs of people living with a rare disease and their carers and to share good practices, to support the integration of rare diseases into social services and to advance holistic and integrated care for rare diseases.

Raquel was previously in charge of EURORDIS’ activities within the EU-funded project INNOVCare and was involved in the European Joint Actions for Rare Diseases, supporting the elaboration and the implementation of the “Commission Expert Group on Rare Diseases Recommendations to Support the Incorporation of Rare Diseases into Social Services and Policies”.

Prior to joining EURORDIS, Raquel designed and coordinated the Portuguese Help Line for rare diseases, after having worked with development projects in Europe and in India.

Raquel holds a Bachelor of Arts in Communication as well as a post graduate degree in Project Management at the Lisbon School of Economics and Management.

A Portuguese national, Raquel is also fluent in English, French and Spanish.

Telephone: +34 932 20 32 24
Email: raquel.castro@eurordis.org

 
 
La voz de los pacientes de enfermedades raras en EuropaEURORDIS La voz internacional de las personas que tienen enfermedades rarasRare Disease International Reuniendo a pacientes, familiares y expertos para compartir experiencias en un foro moderado en distintos idiomas. RareConnect El Programa Rare Barometer es una iniciativa de EURORDIS que realiza encuestas para transformar las experiencias de los pacientes con enfermedades raras en cifras que puedan compartirse con los responsables políticos.Rare Barometer Una campaña internacional de sensibilización que se celebra todos los años el último día de febrero, El Día de las Enfermedades Raras es una iniciativa de EURORDISRare Disease Day Únete al mayor grupo de partes interesadas en toda Europa, en la Conferencia Europea sobre Enfermedades Raras y Medicamentos Huérfanos que se celebra cada dos años. ECRD es una iniciativa de EURORDISEuropean Conference on Rare Diseases