29th EURORDIS Round Table of Companies Workshop

 

How to teach an old medicine new tricks
The importance of repurposing medicines for patients

Wednesday, 19 February 2020 (09.00 to 17.30)

 

Venue

The Crowne Plaza – Le Palace, Brussels

Rue Gineste 3
1210 Bruxelles
Belgium

Programme

Download the final programme.

Download the concept paper.

Registration

Registration is now closed.

For more information on applying for ERTC Membership, please contact Anne-Mary Bodin <anne-mary.bodin@eurordis.org>

 

Objectives

This workshop provides valuable information to its participants with the following objectives:

  • Build on existing repurposing efforts and discuss innovative platforms to boost re-purposing research
  • Understand the STAMP initiative on re-purposing and it’s potential benefits for rare disease patients
  • Understand the opportunity for companies to increase their portfolio of products while also helping to reduce costs and facilitate access to rare disease products
  • Explain the potential for academia, patient organisations and healthcare companies to work more collaboratively together to discover the opportunities for re-purposing products for rare diseases
  • Explore how academia and patient organisations can find research funding to pursue re-purposing for rare diseases
  • Understand the positive impact for rare disease patients if companies open their library of compounds to academics
  • Learn how patient organisations could facilitate the repurposing process

 

Preparation

The use or generation of biomedical data and existing medicines to discover and establish new treatments for patients with rare diseases – recommendations of the IRDiRC Data Mining and Repurposing Task Force 

 

Questions:

Please send any questions concerning registration to Martina Bergna at: martina.bergna@eurordis.org

 

We look forward to welcoming you to the EURORDIS Round Table of Companies.

 
 
La voz de los pacientes de enfermedades raras en EuropaEURORDIS La voz internacional de las personas que tienen enfermedades rarasRare Disease International Reuniendo a pacientes, familiares y expertos para compartir experiencias en un foro moderado en distintos idiomas. RareConnect El Programa Rare Barometer es una iniciativa de EURORDIS que realiza encuestas para transformar las experiencias de los pacientes con enfermedades raras en cifras que puedan compartirse con los responsables políticos.Rare Barometer Una campaña internacional de sensibilización que se celebra todos los años el último día de febrero, El Día de las Enfermedades Raras es una iniciativa de EURORDISRare Disease Day Únete al mayor grupo de partes interesadas en toda Europa, en la Conferencia Europea sobre Enfermedades Raras y Medicamentos Huérfanos que se celebra cada dos años. ECRD es una iniciativa de EURORDISEuropean Conference on Rare Diseases