Donate or organise a fundraising event

Find out how companies can donate to EURORDIS or organise a fundraising event.

 

Donate

Your donation helps to improve the lives of people living with a rare disease and their families

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Organise a fundraising event

Help to raise funds and awareness for the rare disease cause by organising a fundraising event

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Become a partner of the EURORDIS Awards and Black Pearl Evening

This event is held to recognise pioneers of the rare disease cause

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The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseasesRare Disease International Bringing together patients, families and experts to share experiences in a moderated multi-language forum. RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases