Donate or organise a fundraising event

Find out how companies can donate to EURORDIS or organise a fundraising event.



Your donation helps to improve the lives of people living with a rare disease and their families


Organise a fundraising event

Help to raise funds and awareness for the rare disease cause by organising a fundraising event


Become a partner of the EURORDIS Awards and Black Pearl Evening

This event is held to recognise pioneers of the rare disease cause

The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseasesRare Disease International Bringing together patients, families and experts to share experiences in a moderated multi-language forum. RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases