Take action

Find out how companies can get involved in EURORDIS activities.

 

Show your support for Rare Disease Day

Become a friend of Rare Disease Day, EURORDIS’ annual, international awareness-raising event

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Join the EURORDIS Round Table of Companies

The EURORDIS Round Table of Companies (ERTC) is an active group of companies brought together by their common interest in rare diseases

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Become a partner of the EURORDIS Awards and Black Pearl Evening

This event is held to recognise pioneers of the rare disease cause

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Nominate an awardee

Throughout September and October every year you can nominate an individual or organisation that has made an exceptional contribution to the rare disease community

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The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseasesRare Disease International Bringing together patients, families and experts to share experiences in a moderated multi-language forum. RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases