Take action

Find out how companies can get involved in EURORDIS activities.


Show your support for Rare Disease Day

Become a friend of Rare Disease Day, EURORDIS’ annual, international awareness-raising event


Join the EURORDIS Round Table of Companies

The EURORDIS Round Table of Companies (ERTC) is an active group of companies brought together by their common interest in rare diseases


Become a partner of the EURORDIS Awards and Black Pearl Evening

This event is held to recognise pioneers of the rare disease cause


Nominate an awardee

Throughout September and October every year you can nominate an individual or organisation that has made an exceptional contribution to the rare disease community

The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseasesRare Disease International Bringing together patients, families and experts to share experiences in a moderated multi-language forum. RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases