Connect with others

See below for how you can connect with others in the rare disease community.

 

Join RareConnect

Join a patient community or discussion group and discover a safe space in which you can connect with others living with a rare disease

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Connect with us on social media

Follow EURORDIS on Facebook and Twitter to keep up-to-date with EURORDIS’ work

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The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseasesRare Disease International Bringing together patients, families and experts to share experiences in a moderated multi-language forum. RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases