Donate or organise a fundraising event

Find out how you can donate to EURORDIS or organise a fundraising event.



Your donation improves the lives of people living with a rare disease


Fundraising for EURORDIS

Want to hold your own fundraiser and raise awareness about rare diseases? 


Pay in the funds you raise

Find out how to send in the money you raise


How your support helps

  Find out how your money helps the rare disease community

The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseasesRare Disease International Bringing together patients, families and experts to share experiences in a moderated multi-language forum. RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases