Connect with others

See below for how you can connect with others in the rare disease community.


Join RareConnect

Create a patient community or discussion group and discover a safe space in which your members can connect with others living with a rare disease


Connect with us on social media

Follow EURORDIS on Facebook and Twitter to keep up-to-date with EURORDIS’ work

The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseases, Rare Diseases International is a EURORDIS initiativeRare Disease International Bringing together patients, families and experts to share experiences in a moderated multilanguage forum, RareConnect is a EURORDIS initiative RareConnect An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases