Eurordis - Rare Disease Europe

Getting involved in Rare Disease National Networks & ERN National Coordination Hubs

Join this webinar to learn more about how to organise and support patient representation in Rare Disease National Clinical Networks, and how patient representation in these Networks can help to build the interface between the national and European levels.

Speakers at the webinar will also discuss the role of ERN National Hubs National Hubs and how these structures can collaborate with national rare disease patient communities.