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Webinar: Patient Representatives’ Involvement in the ERN Evaluation

Marzo 2023

21st  April 2023 at 14.00-15.30

As the ERNs are coming to the end of the first 5-year cycle, the European Commission has organised the Evaluation of all Networks and patient involvement in the ERNs is a central component of the process. EURORDIS is organising an exchange of good practices webinar to showcase how the patient representatives have been involved in this process, namely by:

  • Setting the context of the methodology being used and,
  • Providing real world experiences from ERN patient representatives and Managers about how the patients have been involved in the process so far

Register HERE and join us to hear how the process is evolving at this exciting moment in the history of the ERNs.