EURORDIS Mental Health & Wellbeing Open Webinar
August 2024
Join us for the EURORDIS 6th Mental Health & Wellbeing Webinar, “How to Deliver a Diagnosis,” on October 23, 2024, from 2:00 pm to 3:30 pm CET (Paris time). This webinar will explore the critical milestone of delivering a rare disease diagnosis for families and individuals affected by rare conditions. A timely and empathetic diagnosis can empower families, while poor communication can lead to significant emotional distress and mistrust in the healthcare system. Experts from European Reference Networks, including ERN CRANIO, ERN-EYE, and VASCERN, will share real cases and best practices, followed by a panel discussion. Don’t miss this opportunity to learn from leading specialists about best practices in delivering a rare disease diagnosis.
💬 Mental health open webinar: How to deliver a diagnosis
➡️ Register now!
🗓️ 23 October 2024
⏰ 2:00 pm to 3:30 pm CET
Concept note
Panelists
Gareth Davies
European Cleft Organisation
Panelist
André Rietman
Erasmus MC Sophia Children’s Hospital
Panelist
Sara Talarico
ERN ReCONNET
Panelist
Gulcin Gumus
EURORDIS
Panelist