National plan for rare diseases: France

Please find documents on/ relevant to the national plans for rare diseases and EUROPLAN conferences in France listed below:

  1. France_RD National Plan_2005-2008_French
  2. France_RD National Plan_2005-2008_English
  3. France_RD National Plan_2011-2014_French
  4. France_RD National Plan_2018-2022_French
  5. France_RD National Plan_2018-2022_English
  6. EUROPLAN_2010_France National Conference_Report_English
  7. EUROPLAN_2014_France National Conference_Report_English

National contact:
Alliance Maladies Rares
French Rare Diseases Alliance

Page created: 19/03/2019
Page last updated: 30/04/2019
The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseasesRare Disease International Bringing together patients, families and experts to share experiences in a moderated multi-language forum. RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases