National plan for rare diseases: Spain

Please find documents on/ relevant to the national strategy for rare diseases and EUROPLAN conferences in Spain listed below:

  1. Spain_RD National Srategy_2009_Spanish
  2. Spain_RD National Srategy_2009_English
  3. Spain_RD National Srategy_Update_2014_Spanish
  4. EUROPLAN_2010_Spain National Conference_Report_English
  5. EUROPLAN_2014_Spain National Conference_Report_English
  6. EUROPLAN_2017_Spain National Conference_Report_English

National contact:
FEDER - Federación Española de Enfermedades Raras
www.enfermedades-raras.org

Page created: 19/03/2019
Page last updated: 06/05/2019
 
 
The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseasesRare Disease International Bringing together patients, families and experts to share experiences in a moderated multi-language forum. RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases