National plan for rare diseases: UK

Please find documents on/ relevant to the UK rare disease national strategy and implementation plan in each of the four nations (England, Northern Ireland, Scotland and Wales) and EUROPLAN conferences listed below:

  1. UK_RD National Strategy_2013
  2. England_RD Implementation Plan_2018
  3. Northern Ireland_RD Implementation Plan_2015
  4. Scotland_RD Implementation Plan_2014
  5. Wales_RD Implementation Plan_2015
  6. EUROPLAN_2010_UK National Conference_Report
  7. EUROPLAN_2014_UK National Conference_Report

National contact:
Genetic Alliance UK

Rare Diseases UK
Rare Disease UK is a campaign run by Genetic Alliance UK

Page created: 20/03/2019
Page last updated: 06/05/2019
The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseasesRare Disease International Bringing together patients, families and experts to share experiences in a moderated multi-language forum. RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases