EURORDIS Training Tools for Patient Representatives: New e-learning module on statistics

Statistics are everywhere! From predicting the weather to selecting the sample size for a clinical trial. Love it or hate it, we cannot escape it. To help you get a head start with this fascinating topic- a new module has been added to EURORDIS’ e-learning section.  

The module on Statistics complements the current e-learning tool developed to improve patient’s understanding of the drug development process, which consists of one module on “methodology” another on “ethics”.  All the modules are freely available on the EURORDIS website (www.eurordis.org/training-resources).
 
The e-learning tool and the EURORDIS Summer School training material aim at empowering rare disease patients’ representatives in the fields of: Clinical trials, Drug development and EU regulatory affairs. The three e-learning modules developed to date aim to provide different tools for different learning preferences; either using theoretical, practical, bibliographical, semantic or a more challenging quiz approach – the choice is yours. While the course is not comprehensive, it serves as a great introduction using more frequently used terms in the different subjects and guides you through various ways of understanding and application.
 
The e-learning tool serves as continued training for EURORDIS Summer School participants or as independent learning for patient organisations.  It is a good way to test knowledge before and/or after attending the Summer School and complements the on-line video presentations. It can also help you start your own training programme.
 
For each module there are several topics that are covered, such as: controlled trial, randomisation, criteria of inclusion and informed consent.
 
The Words approach includes a 400-word glossary of useful terms in the area of clinical trials and drug development.  You can download a version of the glossary to use on your computer at http://summerschool.eurordis.org
 
All these activities are made possible thanks to the support of the European Commission and the Executive Agency for Health and Consumers, the AFM-Telethon, the DIA Philanthropy Programme, INSERM and the Fundació Dr Robert.

For more information:

To access all Training tools, explore the e-learning and Summer School sections of EURORDIS Training Resources

   

Page created: 08/10/2012
Page last updated: 09/10/2012
 
 
The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseasesRare Disease International Bringing together patients, families and experts to share experiences in a moderated multi-language forum. RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases