Rare Disease Day 2015 Video Out Now

 Rare Disease Day 2015 Official Video

Bring people living with a rare disease out of the shadows and into the spotlight - the Rare Disease Day 2015 official video is now available in 21 different languages to watch and share with your friends, families and colleagues.

Following the Rare Disease Day theme Living with a Rare Disease, the 2015 video poignantly recognises the millions of families, friends and carers whose daily lives are impacted by rare diseases.

A big round of applause goes out to the many individuals involved in the creation of the video. Special thanks to video participants Rita, Pietro and Beatrice who are each living with a rare disease, as well as their family members who accompanied them to the filming of the video. Thanks also to UNIAMO, the Italian national rare disease alliance, for making the video production possible and to director Carlo Hintermann, animators Lulu Cancrini and Marco Varriale and all of their team for their in-kind contribution of the creation and production of the video.

The cooperation between all those involved in this year's video is symbolic of the unity and solidarity that families, professionals, policy makers, researchers and industry are demonstrating by living day-by-day, hand-in-hand with rare disease patients.

Watch & Share

We encourage you to show the video at your events, post it on your association website or share it through social media channels. There is also a 30-second version of the video available, created especially for news spots. Please email the Rare Disease Day team if you require this version of the video.

You can also visit RareDiseaseDay.org to get the code you need to embed the video on your website. If the video is not yet translated in your language, you can send us the translation and we will add the text to the video as subtitles.

EURORDIS thanks In the Cut Studios and Leroy Sanchez for the free rights to his performance of the song "People Help the People" (Simon Aldred)© Sony/ATV Music Publishing UK Limited. Permission from Sony/ ATV Music Publishing France.

Be a part of the Rare Disease Day momentum – share the official 2015 video!


Eva Bearryman, Junior Communications Manager, EURORDIS

Page created: 18/02/2015
Page last updated: 17/02/2015
 
 
The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseasesRare Disease International Bringing together patients, families and experts to share experiences in a moderated multi-language forum. RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases