Eurordis - Rare Disease Europe

Rare Adult Cancers Included in the Final Report of the European Parliament’s Special Committee on Beating Cancer

9 December 2021, Paris – EURORDIS-Rare Diseases Europe welcomes the European Parliament’s Special Committee on Beating Cancer (BECA) decision to integrate a section on rare adult cancers – which is lacking in the Europe’s Beating Cancer Plan – in their final report adopted on 9 December 2021 “Strengthening Europe in the fight against cancer – towards a comprehensive and coordinated strategy.” […]

ECPC-EURORDIS joint workshop on rare disease/cancer patient registries

MEPs unite in call for a European Action Plan on Rare Diseases

EURORDIS responds to the European Parliament debate on a European Action Plan on Rare Diseases.

No More Waiting: MEPs insist on action at Rare Disease Day event

Policymakers, patient advocates, and healthcare leaders gather at the European Parliament to urge for EU action

Rare Disease Day 2025 – You Can Do More Than You Can Imagine!

On 28 February, the world will unite for the 18th edition of Rare Disease Day! How can you get involved?

European Parliament Event on Rare Disease Day

Throughout the event, we will: Watch the event Programme View programme as a PDF Setting the scene: 13:30-14:00 Introduction MEPs Adam Jarubas (EPP, Poland) & Stine Bosse (Renew, Denmark) Introduction and welcome Rare Disease Day 2025 official video Watch the video Setting the sceneAdéla Odrihocká, Rare Diseases Czech Republic Reflection key results from EURORDIS Rare […]

Advocacy in action at Rare Disease Week

We highlight the empowering experiences of past participants at Rare Disease Week, where advocates reflect and share their aspirations for driving change.

EURORDIS: Greater focus needed on rare diseases in EU health mandate

EURORDIS responds to the unveiling of new European Commission portfolios.

Claudia Fuchs: The potential of drug repurposing in rare diseases 

Claudia Fuchs, our Drug Repurposing Projects Senior Manager, is inviting manuscripts for a special journal issue on drug repurposing.

EURORDIS Launches Pre-Election Campaign for Rare Disease Equity

EURORDIS releases its eight key policy recommendations for the EU's next policymakers.