EURORDIS partners with many organisations who play a role in working towards improving the lives of people living with a rare disease.
Learned societies
European Connected Health Alliance
European Federation of International Medicine
European Hospital and Healthcare Federation
The European Society of Human Genetics
International Federation of Social Workers, Europe
ISPOR
Improving healthcare decisions
European not-for-profit organisations
European Forum for Good Clinical Practice
The European Federation of Pharmaceutical Industries and Associations
European Patients Forum
European Confederation of Pharmaceutical Entrepreneurs
The European Association for Bioindustries
FIPRA
Global public affairs consultancy network
Friends of Europe
The think tank for a more inclusive, sustainable and forward-thinking Europe
Maladies Rares Information Services
Orphanet
The portal for rare diseases and orphan drugs
Patient Focused Medicines Development
The global collective platform to make patient engagement happen
Platforme Maladies Rares
Paris
Rare Cancers Europe
Social Platform
The platform of European Social NGOs
WECAN
Workgroup of European Cancer Patient Advocacy Networks
RareConnect
Connecting rare disease patients globally