Alain Cornet

  • Treasurer

Alain Cornet

Lupus Belgium, Belgium



Alain was elected to the EURORDIS Board of Directors in 2020 and currently serves as Treasurer.

Alain worked as a Global Finance Executive in a large consumer goods multinational for 32 years. When his wife was diagnosed with Systemic Lupus Erythematosus in 2004, he decided to repurpose his skills towards the rare disease cause, getting involved with the lupus community as a volunteer, treasurer, and patient advocate.

He holds the position of General Secretary of Lupus Europe and is also on the Board of L'ASBL CLAIR (Contre les Affections Rhumatismales Inflammatoires) and the Patient Expertise Center (Belgium), in addition to supporting several groups on governance, finance, leadership and strategy matters.

Alain is an active ePAG advocate in ERN ReCONNET and EJP-RD WP20 on Clinical trials. He is also an alumnus of both EURORDIS Summer and Winter Schools.

The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseasesRare Disease International Bringing together patients, families and experts to share experiences in a moderated multi-language forum. RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases