Ariane Weinman

  • Public Affairs Senior Manager

Ariane Weinmann

Ariane Weinman joined EURORDIS in 2004 and works in the Public Affairs team.

She is involved in European projects where EURORDIS is leader or partner. Within the current European Joint Action RD-ACTION, she coordinates the Work Package “Dissemination” and continues the work started in former projects “EUROPLAN” on implementing national plans for rare diseases together with National Alliances of rare disease patients.  She is highly implicated in the advocacy work of EURORDIS patient advocates, members of the European Commission Expert Group on Cancer Control and of the Commission Expert Group on Rare Diseases, for which she attends as an observer. She also coordinates the volunteers of EURORDIS.

Ariane has a broad knowledge of the international aspects of medicine, public health and scientific research which are a recurring focus in her professional experience.

She has previously worked for the French Federation of Public Hospitals and the Scientific Department of the French Embassy in China. Ariane holds a Master of Arts in International Policy Studies from the Monterey Institute of International Studies.

She speaks French, English and Mandarin Chinese.

Telephone: +33 1 56 53 52 65

The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseases, Rare Diseases International is a EURORDIS initiativeRare Disease International Bringing together patients, families and experts to share experiences in a moderated multilanguage forum, RareConnect is a EURORDIS initiative RareConnect An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases