Geske Wehr

  • General Secretary

Selbsthilfe Ichtyose e.V. Germany


Geske Wehr was elected to the Board of Directors of EURORDIS in 2012 and currently serves as General Secretary.

Geske has three children. Her eldest son suffers from an autosomal recessive congenital Ichthyosis.

Geske has been involved in the German patient organisation Selbshilfe Ichtyose e.V. since 1997. Since 2000 she has co-organised their annual meetings and she was part of their Board of Directors from 2001 until 2006. Her current involvement in Selbshilfe Ichtyhyosis consists of supporting members in asserting their claims to the authorities and health insurances.

In 2004, Geske started working towards founding a European Network of Ichthyosis (eni), which was legalized in 2010, and for which she currently serves as Chief Executive on a voluntary basis. In addition, she has also served as a member of the Board of Directors of ACHSE e.V., the German Alliance for Rare Diseases for several years.

Geske is a member of the Council of European Federations.

The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseasesRare Disease International Bringing together patients, families and experts to share experiences in a moderated multi-language forum. RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases