Gulcin Gumus

  • Research and Policy Project Manager

Gulcin Gumus

Gulcin Gumus joined EURORDIS in June 2018 as Research and Policy Project Manager. She is responsible for supporting project management of the EU‐funded clinical research and research infrastructure projects as well as assisting the Scientific Director and the Public Affairs Team on public affairs and advocacy topics relevant to rare disease research & policy.

Before joining EURORDIS, Gulcin was involved in in several national and European non-profit organisations, coordinating projects about social entrepreneurship and education. She is also a youth facilitator in peer training addressing anti-discrimination.

Gulcin did her Bachelor studies in Molecular Biology and Genetics. She holds a PhD in Fetal and Perinatal Medicine from the University of Barcelona where she worked on research projects by developing pre-clinical therapies for rare prenatal and childhood diseases.

Gulcin speaks English, Spanish, Turkish and some Italian.

Telephone: +34 936 06 84 62

The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseasesRare Disease International Bringing together patients, families and experts to share experiences in a moderated multi-language forum. RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases