Inés Hernando

  • ERN and Healthcare Director

Inés Hernan

Inés Hernando joined EURORDIS as ERN and Healthcare Director in February 2018. In this role she is responsible for monitoring the European landscape on rare disease healthcare from a policy and advocacy perspective, managing all related activities. Inés supports the establishment of European Reference Networks (ERNs) leading the EURORDIS team that manages the 24 European Patient Advocacy Groups (ePAGs) that were set up by EURORDIS in 2016 to ensure a meaningful patient advocates’ engagement across all ERN activities.  

Previously she worked for two years at COCIR as eHealth Senior Manager where she led the organisation's work on all topics related to digital health, focusing specifically on issues such as data protection, interoperability and cross-border data flows. She also worked for eight years in the Spanish Electronic Health Record initiative as eHealth Coordinator where she provided overall programme management and help build the programme partners’ ecosystem that included all Regional Health Authorities and the Ministry of Health. 

Inés holds a Master’s in Health Economics, Policy and Management from the London School of Economics.

Telephone: +32 2 274 06 11

The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseasesRare Disease International Bringing together patients, families and experts to share experiences in a moderated multi-language forum. RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases