Julien Delaye

  • Public Health Policy Junior Manager


Julien Delaye joined EURORDIS in September 2019 for an internship and worked on the Rare 2030 project. He is now Public Health Policy Junior Manager, based in Brussels.

Prior to EURORDIS, he worked as an event coordinator for European Calcified Tissue Society (ECTS), was a volunteer for Osteogenesis Imperfecta Federation Europe (OIFE) and did a marketing internship at Sanofi - Copenhagen.

Julien holds two bachelor’s degrees, in Marketing (Liège – Campus Guillemins) and in European Public Health (Maastricht University), and a master’s degree in Public Policy and Administration (Dublin – UCD). Throughout his studies, he focused his academic work, papers and theses on rare diseases. His master’s thesis investigated the notion of significant benefit and compared the American and European legislative approaches.

Julien speaks French, English and a bit of Dutch.

Email: julien.delaye@eurordis.org

The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseasesRare Disease International Bringing together patients, families and experts to share experiences in a moderated multi-language forum. RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases