Marta Campabadal

  • Patient Engagement Manager - Online Communities, RareConnect Programme Lead

Marta Campabadal

Marta Campabadal joined EURORDIS in 2012 as RareConnect Coordinator and is now working as Patient Engagement Manager - Online Communities, RareConnect Programme Lead.

Marta is part of the Communications team based in Barcelona and works on the RareConnect project. She develops and maintains the RareConnect communities for specific rare diseases while bringing together and engaging patient organisations and patient advocates from all over the world in order to build successful online communities.

She also works identifying the needs of rare disease patients in order to match those needs to available resources, services, patient groups and contact people.

Among other responsibilities, Marta is in charge of the social media channels of RareConnect, designing and implementing the communication and content strategy.

Previously, Marta worked for the Government of Catalonia in internal communication and promotion activities.

Marta has a degree in Advertising and Public Relations from the Pompeu Fabra University in Barcelona.

She is a native Catalan speaker and also speaks Spanish and English.

Telephone: +34 932 20 32 59

The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseasesRare Disease International Bringing together patients, families and experts to share experiences in a moderated multi-language forum. RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases