Martina Bergna

  • Events Manager


Martina Bergna joined EURORDIS in September 2018.

As part of the Communications and Development team, Martina provides support in the development, registration management, organisation, promotion and fundraising of EURORDIS’ major flagship events.

This includes the European Conference on Rare Diseases and Orphan Products (ECRD), the EURORDIS Black Pearl Awards, the Multi-Stakeholder Symposium on Improving Patients' Access to Rare Disease Therapies and the ERTC (EURORDIS Round Table of Companies) workshops.

Martina is responsible for developing digital communications plans for EURORDIS' major events and for the editorial and design of targeted communications materials. She oversees the design and content of the and websites. Martina also manages the EURORDIS Photo Contest, an international campaign which aims to raise awareness about the daily lives of people living with a rare disease.

Prior to joining EURORDIS, Martina worked for 4 years in event operations, management and communications, both in the private and public sector, including work experience for the European Parliament, the European Commission and Oxfam Magasins du Monde.

Martina holds a Bachelor’s degree in Communication and Translation from IULM University in Milan and a Master’s degree in International Relations from ULB University in Brussels.

Martina speaks Italian, English and French as well as some Spanish and basic Portuguese.

Telephone: +33 1 56 53 52 66

The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseasesRare Disease International Bringing together patients, families and experts to share experiences in a moderated multi-language forum. RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases