Valentina Bottarelli

  • Public Affairs Director & Head of European and International Advocacy

Valentina Bottarelli joined EURORDIS in 2007 as European Public Affairs Senior Advisor.

Valentina provides policy analysis and strategic advice on EU policies as well as funding opportunities from EU public institutions.

She is also in charge of coordinating, on behalf of EURORDIS, activities aimed at fostering the development of National Plans on Rare Diseases in EU countries within the framework of the EUROPLAN project.

Valentina has extensive experience in the area of EU policies and programmes. As well as managing European funded projects, she has worked as a consultant in public affairs and communications. She has also worked at the European Commission, Directorate External Affairs.

Valentina holds a Master of Arts in European Political and Administrative Studies from the College of Europe in Bruges.

An Italian national, she speaks Italian, French, English and Spanish.

Telephone: +32 2 274 06 14

The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseasesRare Disease International Bringing together patients, families and experts to share experiences in a moderated multi-language forum. RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases