Good to know

This section explains the importance of being pharmaco-vigilant. If you, or someone you care for, is affected by a disease, it is important to be aware that information exists that can help you in the case of an unexpected event in relation to your treatment.


Which medicines are safe?

A totally safe and still fully effective medicine does not exist. Even penicillin, which has saved millions of lives can cause severe allergies, which can be deadly.


What should I do first if I suspect an adverse drug effect?

Always try to contact your doctor, or another healthcare professional, your pharmacist or your nurse.


If I make a mistake when taking the drug, should I report my error?

Yes, by reporting it you can inform the authorities in charge, who might compare the different packages or notices you may have, and propose changes.


Where can I find information on other reports made by patients?

EudraVigilance is the database where all reports from doctors and patients are recorded, and you now have access to these data.


What happens after I report an adverse drug effect?

All reports are collected by the pharmacovigilance authorities in your country and are analysed both at national and at European level.

The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseasesRare Disease International Bringing together patients, families and experts to share experiences in a moderated multi-language forum. RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases