This section offers links to useful services: where you can report in your country, who can assist you to make sure your report is complete, and where you can find other reports made by other patients taking the same medicines.


Links to reporting sites: where/to whom can I report an adverse drug effect?

See the tools to help you report a side effect yourself.


Links to help lines: I find it complex to report an adverse drug effect. Can anyone help?

The European Network of Rare Diseases Help Lines can help you fill in the reporting form. See the help lines.


Link to EudraVigilance: where can I find information on other reports made by patients?

EudraVigilance is the database where all reports from doctors and patients are recorded.


Pharmacovigilance Glossary

A glossary of terms covering topics including adverse reactions and pharmacovigilance

The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseasesRare Disease International Bringing together patients, families and experts to share experiences in a moderated multi-language forum. RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases