Ask your MEP to #Pledge4RD

From 23 to 26 May 2019, citizens across the EU voted for the Members of the European Parliament (MEPs) they want to represent them for the next five years.

To ensure that the 25 - 30 million people living with a rare disease in Europe and their families are not left behind and achieve their highest potential of health and well-being, we are calling on MEPs to #Pledge4RD.

 

Ask your MEP to #Pledge4RD

>> Why should your MEP care?

Because rare is common. Many people are affected by a rare disease or know someone who is.

Rare diseases affect 25-30 million people in the EU, nearly 5% of the EU population, or the population of Belgium and the Netherlands combined. This estimate only increases when considering the carers, families and friends who need to support their loved ones.

There are over 6,000 rare diseases. The reality is that most people know somebody that is affected by a rare disease, whether they realise it or not.

You can call on your MEP to pledge their support for rare diseases.

>> How can they #Pledge4RD? <<

  1. Download and print the #Pledge4RD sign.
  2. Post their photo on social media using #Pledge4RD and tagging @eurordis

 

See who has made the #Pledge4RD >>>

The #Pledge4RD to leave no one behind

To ensure that the 25 - 30 million people living with a rare disease in Europe and their families are not left behind and achieve their highest potential of health and well-being, MEPs can #Pledge4RD to support a new political framework that:

Read the full pledge leaflet

Click here to download the PDF (English) >>>

Click here to download the PDF (French) >>>

Click here to download the PDF (Italian) >>>

Click here to download the PDF (Czech) >>>

 

MEPs & candidates who have pledged

#Pledge4RD

We thank MEPs and candidates who have already pledged for rare diseases.

See their pledges below:



Belgium
Frederique RIES, Mouvement réformateur  

Croatia
Tonino PICULA, Social Democratic Party of Croatia Biljana BORZAN MEP, Social Democratic Party of Croatia

Czech Republic
Kateřina KONECNA MEP, GUE/NL Pavel POC, Czech Social Democratic Party

Denmark
Eva BORCHORST MEJNERTZ, Radikale Venstre Christel SCHALDEMOSE MEP, S&D
Pernille WEISS, Konservativ Anton EBSEN, Radikale Venstre
Rikke LAURITSEN, Socialistisk Folkeparti Peter WESTERMANN, Socialistisk Folkeparti
Mette POULSEN, SD  

Finland
Sirpa PIETIKAÏNEN MEP, EPP  

France
Françoise GROSSETÊTE MEP, EPP  

Ireland
Brendan SMITH, Fianna Fáil Sheila NUNAN, Labour
Aisling MCNIFFE, Independent (group Families speak out)  

Italy
Mercedes BRESSO MEP, S&D Alessandra MUSSOLINI MEP, EP
Elisabetta GARDINI MEP, EPP Dario TAMBURRANO MEP, EFDD, Movimento 5 Stelle
Rosa D'AMATO MEP, EFDD, Movimento 5 Stelle Paola MACCHI, Movimento 5 Stelle
Enrico FARINA, Movimento 5 Stelle Paola TESTORI, +Europa
Benedetto DELLA VEDOVA, +Europa Daniela AIUTO, +Europa
Marcella GILARDONI, Movimento 5 Stelle Tizian BEGHIN, Movimento 5 Stelle
Donato FORCILLO, Movimento 5 Stelle Matias Eduardo DIAZ, Movimento 5 Stelle
Eleonora EVI, Movimento 5 Stelle Nadia PISEDDU, Movimento 5 Stelle
Chiara Maria GEMMA, Movimento 5 Stelle Daniele VIOTTI, Democratic Party

Latvia
Sergejs AKULIČS, Latvijas Attīstībai  

Luxembourg
Gary DIDERICH, déi Lénk Anne DAEMS, Demokratesch Partei
Christian KMIOTEK, European Greens Charles GOERENS MEP, ALDE, Democratic Party
Loris MEYER, Democratic Party Isabel WISELER-SANTOS LIMA, CSV
Tilly METZ, MEP, Green Party Meris SEHOVIC, Green Party
Antoni MONTSERRAT, Déi Lénk Mara MARTINS, Déi Lénk

Malta
Alex AGIUS SALIBA, Progressive Alliance of Socialists and Democrats Felix BUSUTTIL, Progressive Alliance of Socialists and Democrats
Josef CARUANA, Progressive Alliance of Socialists and Democrats Noel CASSAR, Progressive Alliance of Socialists and Democrats
Josianne CUTAJAR, Progressive Alliance of Socialists and Democrats Miriam DALLI, Progressive Alliance of Socialists and Democrats
Cyrus ENGERER, Progressive Alliance of Socialists and Democrats James GRECH, Progressive Alliance of Socialists and Democrats
Joe SAMMUT, Progressive Alliance of Socialists and Democrats Alfred SANT, Progressive Alliance of Socialists and Democrats
Robert MICALLEF, Progressive Alliance of Socialists and Democrats Lorna VASSALLO, Progressive Alliance of Socialists and Democrats
Mary GAUCI, Progressive Alliance of Socialists and Democrats Fleur VELLA, Progressive Alliance of Socialists and Democrats

Poland
Marek PLURA MEP, EPP  

Romania
Norica NICOLAI MEP, ALDE  

Slovenia
Tanja FAJON, MEP, S&D Igor ŠOLTES MEP, Greens/European Free Alliance

Spain
Juan Ignacio ZOIDO, Partido Popular  

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

Page created: 19/04/2019
Page last updated: 03/06/2019
 
 
The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseasesRare Disease International Bringing together patients, families and experts to share experiences in a moderated multi-language forum. RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases