#Pledge4RD leaflet

In May 2019, citizens across the EU will vote for the Members of the European Parliament (MEPs) they want to represent them for the next five years.
In March 2019, EURORDIS launched a pledge for rare diseases. Now is the time to call on your returning MEP or a candidate MEP to pledge their support for rare diseases and to support a new political framework that:

  • Enables all people living with a rare disease to receive an accurate diagnosis and appropriate care within one year of coming to medical attention
  • Supports holistic care and social systems that are inclusive of people living with a rare disease, throughout their lives
  • Seizes opportunities in science and innovation that embody hope for people living with rare diseases and their carers and can change their lives

Click here to download the PDF >>>

The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseasesRare Disease International Bringing together patients, families and experts to share experiences in a moderated multi-language forum. RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases