Conect4Children (c4c) brings together pharmaceutical companies, paediatric national networks as well as EU multinational sub-specialty networks, large patient advocacy groups, children’s hospitals and other public research organisations from across Europe. The project aims to facilitate the development of new drugs and other therapies for the entire paediatric population.
EURORDIS role in the project
In all its activities, c4c places patients at the center, ensuring that children and young people, parents and carers participates in all aspects of clinical trials. Many initiatives have been carried out, such as the development of specific training courses for clinical experts and patients, and the promotion of specific paediatric clinical trials. EURORDIS was particularly involved in the Programme Committee of the three c4c Multi-Stakeholder Meetings, where we involved relevant patient experts in the meetings: paediatric Inflammatory Bowel Disease, paediatric Atopic Dermatitis and Medical Devices in Paediatric Type I Diabetes. EURORDIS also led a workshop for patient organisations on pediatric drug development and a follow-up webinar for patient experts about c4c activities which is now available on the c4c website.
- Scientific Publication: Paediatric Inflammatory Bowel Disease: A Multi-Stakeholder Perspective to Improve Development of Drugs for Children and Adolescents
- Article: Ensuring paediatric medicines are tailored to young people and children
- Article: How patients can be involved in paediatric clinical trials at regulatory level?
- Educational materials: https://conect4children.org/educational-resources-library/