EUCAPA is designed to train patients and their representatives in Health Technology Assessment (HTA) – the multidisciplinary and systematic process that evaluates the added value of a health technology in comparison to other existing or new ones. Through EUCAPA, patients and their representatives will gain knowledge and skills to participate in HTA decision-making processes and advocate for equitable access to innovative treatments for rare diseases.
March 2023 – TBC
EURORDIS role in the project
EURORDIS is the coordinator of the project, and responsible for project management, such as logistics and coordination. EURORDIS is also responsible for recruiting and selecting patients and developing the introductory HTA training, which will ensure that patients and patient organisations have the necessary knowledge of the HTA process to be meaningfully involved in HTA (both in scientific consultations and assessments). After undergoing the training programmes, patient experts will acquire the necessary skills, knowledge, and understanding of HTA, allowing them to constructively participate and present their lived experience in assessing health technologies.
The HTA Cooperation is firstly about transparency of HTA procedures and reports, and high quality of the assessment. With appropriate training, patients can take part in EU HTA, understand how assessments are made, contribute, and improve their quality.François Houÿez, Information & Access to Therapies Director & Health Policy Advisor at EURORDIS