The EURORDIS Round Table of Companies (ERTC)

The EURORDIS Round Table of Companies (ERTC) fosters an educational relationship and a constructive dialogue between EURORDIS and companies addressing rare diseases.

Since its inception 20 years ago, EURORDIS has gained expertise in dealing with the various public and private institutions involved in the rare disease and orphan drug fields. Through the ERTC programme, EURORDIS shares this expertise by bringing together industry, patient advocates, public officials and other experts to address patient needs. Discussions mainly take place at two ERTC workshops.

 

ERTC Members

Today, ERTC members include over 70 companies, from start-up bio-techs to mid-sized and large pharmaceutical companies, based all over Europe and the USA.

ler mais...
 

Join the ERTC

The EURORDIS Round Table of Companies (ERTC) fosters an educational relationship and a constructive dialogue between EURORDIS and companies addressing rare diseases.

ler mais...
 

ERTC Workshops

The ERTC holds regular workshops, bringing together stakeholders to discuss topics relevant to the development of orphan drugs and other treatments for rare diseases.

ler mais...
 
 
A voz das pessoas com doenças raras na EuropaEURORDIS A voz internacional das pessoas com doenças raras, Rare Diseases Internacional, é uma iniciativa da EURORDISRare Disease International Reúne doentes, famílias e especialistas para partilhar experiências num fórum multilinguístico. RareConnect O programa Rare Barometer é uma iniciativa da EURORDIS para a realização de inquéritos para transformar a experiência das pessoas com doenças raras em números e factos que podem ser partilhados com os responsáveis pela tomada de decisões.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Adira ao maior encontro europeu das partes interessadas no âmbito das doenças raras na Conferência Bienal Europeia sobre Doenças Raras e Produtos Órfãos. A ECRD é uma iniciativa da EURORDISEuropean Conference on Rare Diseases