13th Workshop, Paris: "Patients' Access to OMPs, Innovative Pricing Schemes and National Measures in a Global Financial and Economic Crisis Environment"

13th Workshop of the Eurordis Round Table of Companies:

"Patients' Access to OMPs, Innovative Pricing Schemes and National Measures in a Global Financial and Economic Crisis Environment"

 

December 13th, 2010

Paris, France

13th ERTC Workshop ParisAttracting a larger audience than usual, the topic of this workshop was timely in a global financial and economic crisis environment, with additional pressure on national healthcare budgets. In a context of promotion of national plans and strategies on rare diseases in all the European Member States, the development of new and more appropriate measures to improve access to Orphan Medicinal Products has become a priority.

During this workshop, the results of two surveys on patient access to orphan drugs were presented and the crucial need for an early dialogue and a coordinated EU approach were discussed, to aid patients’ access to Orphan Medicinal Products.

 

Participants: 86

Programme

Concept Paper

Proceedings

For ERTC Members only, this document is password protected. If you want to become a member, find out more here or contact Anne-Mary Bodin, Operations Assistant.

 

 
 
The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseasesRare Disease International Bringing together patients, families and experts to share experiences in a moderated multi-language forum. RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases