22nd Workshop, Brussels: “Rare Diseases: Going Global”

22nd Workshop of the EURORDIS Round Table of Companies

“Rare Diseases: Going Global”


February 25th, 2015

Brussels, Belgium

22nd ERTC WorkshopIn the current climate, the development of innovative rare disease therapies is mostly global in nature due to the rarity of patients and experts, as well as to the fact that companies and investors have an increasingly international approach to the market. The meeting's objective was to discuss the opportunities that 'going international' presents, as well as to look at possible approaches for a long-term, structured, progressive internationalisation that involves patients, patient organisations, researchers, industry and competent authorities.

Participants: 88


Concept paper 


For ERTC Members only, this document is password protected. If you want to become a member, find out more here or contact Anne-Mary Bodin, Operations Assistant.


The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseasesRare Disease International Bringing together patients, families and experts to share experiences in a moderated multi-language forum. RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases