27th EURORDIS Round Table of Companies Workshop

"Patient engagement in the product life-cycle and community advisory boards (CAB)"

Tuesday, 16 October 2018 (09:00 to 17:00)


Draft programme  


Registration for this event will open in summer.

Attendance at this event is recommended for the following target audience:

  • Pharmaceutical and biotech representatives working in:

  • Clinical Project Management, Science Policy, Clinical Development, Medical Science, Research, Medical & Innovation, Medicines Development, Research & Development, External Science & Partnering, Clinicial Scientists

  • Regulatory Affairs

  • Patient Advocacy, Public Affairs, Patient Engagement, Patient Partnership, Patient Support

  • Pharmaceutical and biotech companies engaging in Scientific Advice / HTA meetings

  • Clinical Research Organisations (CROs)

  • Medical devices companies

  • Rare disease patient representatives engaged in active CABs or those in creation

  • Rare disease patient advocates representing groups that co-sponsor clinical trials / joint ventures with the healthcare industry

  • Representatives from non-profit organisations/foundations developing medicines/therapies for rare diseases


Recinte Modernista de Sant Pau

Carrer de Sant Antoni Maria Claret, 167

08025 Barcelona


Website : https://www.santpaubarcelona.org/en

Welcome Dinner:

There will be a Welcome dinner on Monday, 15 October starting at 8 p.m.

Venue to be confirmed.

Dress code: smart casual.

There will be a complimentary return bus service provided from the restaurant to the AYRE HOTEL ROSELLON.


Please make your own hotel reservations and travel arrangements. A list of hotels close to the workshop venue will be provided soon.


Please send any questions concerning registration to Anne-Mary Bodin: anne-mary.bodin@eurordis.org or Emilie Zingg: Emilie.zingg@eurordis.org

The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseases, Rare Diseases International is a EURORDIS initiativeRare Disease International Bringing together patients, families and experts to share experiences in a moderated multilanguage forum, RareConnect is a EURORDIS initiative RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases