EURORDIS Recommendations on the Integration of European Reference Networks into National Health Systems



EURORDIS recommendations on how to better integrate European Referenerns.jpgce Networks into national health systems

On the occasion of the fourth European Reference Network conference organised by the European Commission in Brussels in November 2018, EURORDIS launched new recommendations on how to better integrate European Reference Networks (ERNs) into national health systems.

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The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseasesRare Disease International Bringing together patients, families and experts to share experiences in a moderated multi-language forum. RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases