A EURORDIS report on the challenges faced by displaced Ukrainians affected by a rare disease - Moldova

June 2022

This second report in the series of EURORDIS' reports on the challenges faced by displaced Ukrainians affected by a rare disease focuses on the support provided to the displaced Ukrainians living with a rare disease in the Republic of Moldova.

While its own population amounts to only slightly more than 4 million people, the Republic of Moldova is among the 5 main hosts of displaced Ukrainians in absolute figures. And though support to Ukrainians is well-organised and generous, limited healthcare provision means Moldova is largely a short-term place of transit for Ukrainians living with a rare disease. Despite an unprecedented mobilisation on the part of the Moldova government and its civil society, issues remain, and the families from Ukraine and the organisations in Moldova who support them require more involvement on the part of the international community.

It is important to recognise that this is a rapidly-changing situation. This report was compiled in May 2022, and what is true today may be different in a few weeks’ time. EURORDIS will endeavour to review the situation and provide updates as needed.

Download the report in English / Ukrainian / Romanian

The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseasesRare Disease International Bringing together patients, families and experts to share experiences in a moderated multi-language forum. RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases