Health Technology Assessment Joint Statement

HTA Joint Statement

14 European patient organisations call for meaningful involvement in European cooperation on health technology assessment

EURORDIS is one of 14 European patient organisations to sign a statement calling on European institutions to adopt appropriate measures to fully incorporate the meaningful involvement of patients in the future European Cooperation on HTA.

(November 2018)

The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseasesRare Disease International Bringing together patients, families and experts to share experiences in a moderated multi-language forum. RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases