Juggling care and daily life: The balancing act of the rare disease community
An infographic showing the results of the first Europe-wide survey on the impact of rare diseases on daily life. The survey was carried out via Rare Barometer Voices, the EURORDIS survey initiative.
The data from this survey has been organised into infographics showing the results from across Europe, by country and by disease grouping.
Read the full survey report
Infographic - results from across Europe
This infographic shows the collective results of all the 3071 respondents from 42 countries across Europe.
Infographic - country-specific results
The results of this survey have been broken down per country and translated into the relevant language.
The results are available for the following countries:








Infographic - disease grouping specific results