RARE CANCER AGENDA 2030 - Ten Recommendations from the EU Joint Action on Rare Cancers

Rare Cancers Europe, a collaborating partner of the recently completed EU Joint Action on Rare Cancers (JARC), is committed to take over the JARC legacy and to support the rare cancer community towards the effective implementation of the Joint Action’s overarching deliverable, namely the Rare Cancer Agenda 2030. In the next years RCE will continue this collaborative effort by spreading awareness of rare cancers across Europe, strengthening healthcare networking as well as advancing clinical and methodological research in the field of rare cancers.

The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseasesRare Disease International Bringing together patients, families and experts to share experiences in a moderated multi-language forum. RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases