Eurordis - Rare Disease Europe

The ‘Become a Member’ brochure provides an overview of EURORDIS-Rare Diseases Europe, a non-profit alliance uniting over 1000 rare disease patient organisations across more than 74 countries. It highlights the benefits of joining EURORDIS, from advocacy and networking opportunities to capacity-building and participation in key healthcare and policy initiatives.

The brochure outlines seven key reasons to become a member, including the ability to:

1. Join a strong international network of patient organisations, researchers, healthcare providers, and policymakers.
2. Gain training and knowledge through the EURORDIS Open Academy and workshops, empowering patient advocates.
3. Influence EU policies by participating in working groups and contributing to position papers.
4. Connect with peers worldwide through annual meetings, webinars, and conferences.
5. Engage in research and healthcare initiatives that shape policies and drive patient-centred progress.
6. Access and share expert insights on key rare disease topics.
7. Use data for advocacy, leveraging survey results from the Rare Barometer programme.

Additionally, the brochure details exclusive benefits for members, including preferential event rates, promotional opportunities, voting rights, and support for creating patient-led advisory boards. It also provides clear guidance on membership fees and the application process for organisations interested in joining.

By becoming a EURORDIS member, patient organisations gain a stronger voice, valuable resources, and opportunities to drive meaningful change in the rare disease community.