Eurordis - Rare Disease Europe

The EURORDIS Blueprint for Psychosocial Care outlines a structured approach to address the psychosocial needs of people living with rare diseases and their families. It provides recommendations to develop psychosocial programmes that enhance existing medical care.

The blueprint defines psychosocial care, identifies barriers to accessing support, and proposes standards across eight domains, including holistic care, prevention, and family orientation. It advocates for integrating psychosocial care as a core component of medical care.

This blueprint guides healthcare providers and policymakers in developing effective psychosocial care programmes, aiming to reduce stress and improve the wellbeing of people living with rare diseases and their families.