EURORDIS Position Paper on Mental Health and Wellbeing
The EURORDIS Position Paper on Mental Health and Wellbeing details the significant mental health challenges faced by people living with rare diseases and their families.
The paper emphasises the need for specific actions across all policy areas to address these unique needs. The document highlights the connection between physical and mental health and calls for implementing effective programmes, as supported by the United Nations General Assembly Resolution. It advocates for the inclusion of people living with rare diseases in European mental health policies and urges EU Member States to develop national strategies that integrate psychosocial support into standard medical care.
This position paper provides a blueprint for developing psychosocial programmes to meet the mental health needs of people living with rare diseases and their families.