EURORDIS Executive Summary on Mental Health and Wellbeing
The Executive Summary of the EURORDIS Position Paper on Mental Health and Wellbeing summarises the mental health challenges faced by people living with rare diseases and their families. It highlights the severe impact of rare diseases on mental health and the increased vulnerability due to multiple intersectional needs.
The summary calls for the inclusion of people living with rare diseases in mental health initiatives at both the European and national levels, aligning with the United Nations General Assembly Resolution. It recommends integrating psychosocial support into medical care and developing national strategies to address these mental health needs.
This executive summary urges policymakers and healthcare providers to prioritise the mental health of people living with rare diseases.