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December 2009

Centres of Expertise & European Reference Networks for Rare Diseases

In 2008, EURORDIS adopted this Declaration of “Common Principles on Centres of Expertise and European Reference Networks for Rare Diseases”, in order to improve patient care throughout Europe.

Rare disease patients call upon National Health Authorities to endorse, publicise and implement the following Declaration to contribute to the identification of Centres of Expertise and to support them financially.

Length: 4 pages

Languages: English, French, German, Italian & Spanish