Eurordis - Rare Disease Europe

Workshop Toolkit: Patient involvement in Clinical Practice Guidelines

Patient involvement is a fundamental requirement for the development of high-quality, evidence-based Clinical Practice Guidelines (CPGs).

This toolkit will help you to plan and deliver a face-to-face workshop for patient representatives and clinicians involved in the European Reference Networks (ERNs), so they can learn in an interactive manner about how CPGs are developed and how the patient voice can be incorporated throughout the process. 

The toolkit is comprised of three documents:

1. A short description of the workshop’s stages
2. Facilitator’s instructions that will guide you to plan and deliver the workshop
3. Information sheet for workshop participants

Learn more about Patient involvement in the development of clinical practice guidelines & clinical decision support tools and explore further tools and resources for patient involvement in Clinical Practice Guidelines.