Tools and Resources for Patient Involvement in Clinical Practice Guidelines
July 2023Clinical Practice Guidelines (CPGs) are evidence-based clinical decision support tools that help healthcare professionals, patients and family caregivers make well-informed and high-quality decisions about their care and treatment.
Over the course of this series, we delve into the details of Clinical Practice Guidelines from initial scoping, research and through to implementation. Through the lenses of clinicians, patient advocates, and European Reference Networks (ERNs), we aim to shed some light on the work surrounding Clinical Practice Guidelines.
We invite you to explore these bite-size webinars at your own pace and hope you will find them informative and interesting!
Overview of CPG Development
Preparation
Research
Writing
Implement
CPGs are developed following a stepwise process, structured under the following 4 main stages:
1) Preparation, 2) Research, 3) Writing and 4) Implementation. Patients can be involved in CPG development throughout these 4 major stages.
Guide for Patient involvement in the development of clinical practice guidelines & clinical decision support tools
If you are interested in knowing more about how CPGs and CDSTs are developed and how the patient voice can be incorporated read this practical guide.
Methodologies
Patient Involvement in Developing a new Clinical Practice Guidelines
Preparation
Research
Writing
Implementation
Patient Involvement in Appraisal of an existing Guidelines
Appraisal of an Existing Guideline
Guideline Best Practices
ERN best practice case studies
European best practice case studies
If you are interested in Clinical Practice Guidelines and would like to further explore this topic, you may find it useful to explore:
- Our guide on Patient involvement in CPGs
- Handbook 13: Patients’ involvement in the development of CPGs and CDSTs on rare, low-prevalence and complex diseases: a guide for the chair and members of GDGs, a step-by-step guide developed by a consortium contracted by the European Commission to support the ERNs in the development of CPGs and clinical-decision support tools. EURORDIS, alongside fellow patient representatives, has contributed to its development.
- 3 Webinars on Clinical Practice Guideline development, Patient involvement in developing Clinical Practice Guidelines and How-To-Guide On Implementation of an ERN Guideline
- Webinar on Involvement of patients in ERN GENTURIS tumour surveillance guidelines for individuals with neurofibromatosis type 1