Eurordis - Rare Disease Europe

Patient involvement is a fundamental requirement for the development of high-quality Clinical Practice Guidelines (CPGs) and Clinical Decision Support Tools (CDSTs). If you are interested in knowing more about how CPGs and CDSTs are developed and how the patient voice can be incorporated read this practical guide. It also comes with a Patient involvement action planner and tracker that can help you plan and keep track of the actions taken to ensure the successful inclusion of the patient voice.